How to Start a T1D to 100 Support Group

Starting a support group for adults aging with Type 1 diabetes is one of the most powerful ways to build community, share wisdom, and feel less alone on the journey. Here are some simple, practical steps to get you going:

Gather a Core Team

• Start with 2–3 people so the responsibility doesn’t fall on one person.
• Define clear roles (organizer, communicator, tech host) to keep things running smoothly.
• Write a short mission statement: “What’s our purpose, and who do we hope to reach?”

Decide Your Group Structure

• Will your group be open (anyone can join) or closed (invite-only, limited size)
• Focus: just T1Ds? Older adults with T1D? Caregivers and families too?

Plan Meetings That Work

• Choose a regular schedule (weekly, monthly, etc.)—consistency builds trust.
• Pick an accessible venue: library, community center, hospital, or diabetes education
  center.
• Consider virtual (Zoom, Teams) or hybrid options for flexibility.
• Make sure the space feels welcoming and private enough for open sharing.

Connect and Grow

• Partner with endocrinologists, diabetes educators, clinics, and local organizations for
  referrals and speakers.
• Share flyers in clinics, pharmacies, gyms, and community centers.
• Spread the word on social media and newsletters.

Open Communication Channels

• Create an email or text list for reminders, resources, and feedback.
• A private Facebook group or shared digital folder can keep the conversation going
  between meetings.

Keep Meetings Welcoming

• A simple agenda helps: introductions → topic/speaker → Q&A/discussion → wrap-up.
• Use icebreakers, name tags, snacks, and a greeter to make newcomers feel at home.
• Rotate responsibilities so no one burns out.

Build a Safe, Supportive Space

• Ground rules: confidentiality, respect, equal speaking time, no giving medical advice.
• Adapt activities for both talkative and quiet members.
• Celebrate small wins and milestones together!

Plan Great Meeting Content

• Popular topics: devices, travel tips, recipes, new research, burnout strategies, mental
  health, advocacy, emergency preparedness, and more.
• Invite guest speakers like doctors, tech reps, or researchers for fresh insights.

Keep It Sustainable

• Rotate leadership roles to share the workload and build ownership.
• Ask for feedback regularly—let the group evolve as needs change.
• Celebrate your progress—both group achievements and personal milestones.

✨ Most of all, remember: you’re creating a safe, supportive space where people can
connect, share, and thrive.

How to Start a T1D to 100 Support Group – Downloadable PDF Version