How did T1D to 100 Get Its Name?
I’m happy to share the origins of the name: T1D to 100.
Our little study group met several times in my home in 2018-2019, about 10-12 of us, to discuss our concerns and issues and possible solutions for aging T1Ds. It was a very enthusiastic and focused group, committed to helping our community.
When it came to naming this project, “T1D to 100” was proposed by a dear friend, Barry W. and it just resonated!
A bit about Barry. He was referred to me by my non-T1D CPA, Tom, a golfing buddy with Barry. One day, Barry passed out on the golf course … low blood sugar. But no one really knew much about his diabetes of what to do.
Tom called me and, as he related the golf course incident, he asked, “Would you be willing to chat with him, maybe help him?”
I called Barry, and we talked for over an hour. Then, I invited him to an impromptu gathering that weekend with several T!D friends, to test our use of Afrezza, an inhalable insulin.
Barry showed up! At the age of 60, he had NEVER met another T1D! He was so excited and soaking up all our group knowledge! And we became wonderful friends.
We lost Barry to cancer 2 years ago … beyond sad. But his passion, kindness, and legacy for our group lives on!
Last updated 08/05/2025.
Recent Stories
Interview – Resilience and Aging with Type 1 Diabetes: A Conversation with Scott Johnson
Scott K. Johnson is a prominent Type 1 diabetes (T1D) advocate, blogger, and speaker diagnosed in 1980 at age five. Known for early work in the online diabetes community and his blog, scottsdiabetes.com, he focuses on the emotional and technology-driven aspects of diabetes management. He has worked extensively with mySugr and now with Blue Circle Health, aiming to empower patients and improve diabetes care. I sat down with Scott recently to talk about staying resilient when faced with the challenges of aging and of T1D in general.
Research Study – A Successful Diabetes Management Model of Care in Long-Term Care Facilities
This study, published in the Journal of the American Medical Directors Association (JAMDA) in 2021, describes a practical diabetes care program developed and tested in six long-term care facilities. Rather than focusing only on blood sugar targets, the program trained nurses and other staff to recognize diabetes problems early, screen every new resident for their risk of high or low blood glucose, and follow standardized care protocols while tailoring treatment to each resident’s individual needs.
Webinar – Let’s Talk T1D & Mental Health with Jenna Eisenberg
In this first session, Jenna will introduce how mental health and diabetes affect each other, share a few practical tools you can use right away, and open it up for Q&A. This is just the beginning. Future calls will go deeper into burnout, distress, body image, family support, and more.