Experiences of Family Members Supporting Adults With Type 1 Diabetes: A Qualitative Study

Peter Hellman, Anna Carin Aho, Charlotte Gillrell, Anne Wennick, Malin Axelsson

Abstract

Purpose: The purpose of the current study was to explore family members’ experiences of how to support an adult with type 1 diabetes (T1D). Methods: A qualitative descriptive study with thematic analysis was conducted in Sweden between 2020 and 2021. Interview transcripts were analyzed from 13 family members (≥18 years) of an adult with T1D, and inductive coding identified salient themes. Family members were recruited via social media, and their time as family members of an individual with T1D ranged from 3 to 38 years (median 24). Results: The analysis and coding identified 4 salient themes: (1) searching for knowledge in unfamiliar situations, (2) applying new knowledge in everyday life, (3) balancing support to fit need and situation, and (4) over time, the support role matures. Conclusions: Families with members with T1D are complex, with relational and behavioral challenges arising as the members live their lives. Routines, habits, and unexpected events become especially challenging for families with a member with T1D. Because most self-care activities for adults are carried out within the family, directly involving family members in educational interventions is important. These interventions should include providing information about the symptoms and treatment for T1D, developing knowledge about how families can be affected, but also providing strategies for how families can optimally implement necessary daily changes.

Experiences of Family Members Supporting Adults With Type 1 Diabetes: A Qualitative Study – PubMed:  https://pubmed.ncbi.nlm.nih.gov/41479245/

Last updated 04/14/2026.